On the afternoon of November 23, 2012, Sam Counts left his home on
East Ninth Avenue in Spokane Valley to pick up bread from the grocery
store. Simple enough. He had just gotten back from Christmas shopping
with his wife of 45 years, now also his full-time caretaker. Counts, 71,
had been diagnosed with dementia less than a year earlier.We rounded up
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Hanging onto normalcy before the disease progressed further, Sams
daughter Sue Belote would visit him several times a week, and he would
still call her on the phone, she says. Sams doctor had said it was OK to
drive, as long as someone else was in the car. On this Friday, Sam got
into his white 2012 Kia SUV alone.
After two hours Donna called
her daughter, worried. I dont know what to do. Dad didnt come back and
he never stays away this long,We offer the biggest collection of old
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canvas. she said. Three hours after he left, the family reported Sam
Counts missing.The next morning, Saturday, radio and television outlets
reported versions of the same story: a local man missing, trim, six feet
tall, last seen in a red-and-black jacket, jeans and white tennis
shoes. A description of a car and its license plate number was
included.
Over seven frantic days, with the help of the Spokane
County Sheriffs Office, friends and family led a search that spanned
parts of three states. They enlisted the help of a family friend who
worked for the Spokane transit system to flyer local buses, and former
colleagues of Counts in the postal service put up missing person photos
in post offices. In the meantime, the family faced public criticism. Why
was he allowed to get into the car alone? Why didnt he have a cell
phone?
Wandering behavior has become increasingly familiar. Yet
Washington is not prepared to deal with this emerging public health
threat. Few police departments have policies or training to educate
officers on Alzheimers or dementia. An Amber Alert-like system set up in
2009 to help find wandering people is underused, its coordinator
acknowledges, and bills to create a formal Silver Alert system like
those in more than 20 other states foundered in both houses of the state
Legislature this year. Washington is also one of just six states that
havent even started work on a statewide Alzheimers plan, even as the
population at risk of wandering surges.
Over the same five-year
period, at least 33 Washington residents with dementia who wandered have
been found safe, according to news media reports. In each of those
cases, law enforcement became involved either as a result of a missing
persons report filed by family or a caretaker or when alerted to unusual
behavior by a member of the public. King County Search and Rescue has
responded to 10 cases involving Alzheimers or dementia since the start
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Countless other cases are not reported to the police, not reported in
the media, or both, according to experts.
There is no mandatory
waiting period to report endangered adults as missing. That can happen
in the first hour that a dementia sufferer is missing, authorities
say.The number of people at risk is increasing. In 2010, 110,000 people
aged 65 and older with Alzheimers lived in Washington, a 33 percent jump
since 2000. By 2025, the Alzheimers Association expects there to be
150,000. And six in 10 Alzheimers patients will wander.Learn how an
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The
question that a growing coalition of search and rescue professionals,
caregivers, and policymakers across the nation face is this: How do we
stop people with Alzheimers or dementia from going missing and how do we
design systems to bring them home safely when they do?It was more than a
year before Sam Counts went missing when his family first started to
worry that something might be wrong. They started noticing changes, like
how hed no longer push his grandchildren on the tire swing hung from a
tree outside the house when they called for him. He was increasingly
forgetful.
Even so, doctors were slow to make a diagnosis. That
didnt happen until one of Counts daughters, a registered nurse, flew out
to Washington to stay with her parents for a week, keeping a daily
journal of his behavior. Soon after, Counts was put on a drug regimen to
try to slow the loss of memory that had been carefully documented in
the notebook his daughter gave to the doctor.
Maybe thats what
changed (the doctors) mind, I dont know, Sue says. But she remembers
clearly her mothers phone call when the dementia diagnosis was official.
I just was devastated. As soon as you hear the word, like cancer, its
like everything flashes through your mind what your loved one is going
to experience.
The science behind Alzheimers disease and dementia,Other companies want a piece of that casesforipadmini action
which is a symptom of Alzheimers but can also be caused by a host of
other maladies or injuries to the brain, is still emerging. There is no
cure for Alzheimers; theres not even a surefire way to slow its
progression.
The most common type of the disease appears to
start in a part of the brain called the temporal lobe, up above the ear,
says Dr. Kristoffer Rhoads, a neuropsychologist and memory specialist
at Virginia Mason Medical Center in Seattle, as he rotates a plastic
model of a human brain in his hands.
He points to the
hippocampus. In here is a critical piece for new learning and memory,
especially short-term memory, he says. In the early stages of the
disease, the structures are still there, but theyre not running well.
As
the disease progresses and more parts of the brain begin to atrophy,
patients may lose the ability to perform more complex day-to-day tasks
like driving. Medium-term memory can be affected, essentially taking
individuals back in time to where their only memories are of homes and
workplaces from years and even decades earlier.
On foot,
wanderers tend to stay in the community, and most are found near where
they were last seen. Seventy-five percent are found within 1.2 miles in
flat, temperate areas such as Eastern Washington, and half are found
within half a mile, according to Robert Koester, author of Lost Person
Behavior and a speaker at the most recent state search and rescue
conference. If someone with dementia gets stuck while wandering, or
encounters an obstacle, he is likely to sit down and end up hidden away.
When a vehicle is involved, the search radius immediately grows, but
there is still an intended destination in most cases.
Their
characteristics are very predictable, in a bad way, says Dr. Meredeth
Rowe, a professor at the University of South Florida College of Nursing.
Wanderers arent able to seek out help when they are lost. They wont
answer when their name is called. They cant tell if they are too cold,
too hot, or need a drink of water.
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